This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. 14 divisions. Founded 1976. Dedicated to the prevention, treatment and cure of liver disease (including hepatitis) through research, education and advocacy. Members include patients, families, professionals and supporters. Chapters organized and operated by lay volunteers and staff. Online local division locator.
American Liver Foundation
39 Broadway, Ste. 2700
New York, NY 10006
Model. Founded 1995. Dedicated to addressing the emotional, educational and financial needs of families with children with liver disease or liver transplantation. Telephone hotline, newsletter, parent matching, literature and financial assistance. Supports research and educates public about organ donations.
25379 Wayne Mills Pl., Suite 143
Valencia, CA 91355
Voice: 1-877-679-8256 or 661-263-9099
Online. 2000+ members. Founded 1998. Support for patients or family members of patients with primary sclerosing cholangitis, a chronic cholestatic liver disease characterized by periductal inflammation of both intrahepatic and extrahepatic bile ducts.