Skip to content
My WebMD Sign In, Sign Up

Fibromyalgia Health Center

Font Size

WebMD Fibromyalgia Community: Do I Have Fibromyalgia? Misdiagnosed?

By Ellen Greenlaw
WebMD Feature
Reviewed by Louise Chang, MD

One member of WebMD’s fibromyalgia community wonders if it's possible that she has been misdiagnosed with fibromyalgia. “My pain is centered in my lower back. I was under the impression that fibromyalgia affects the whole body,” she says. She has back spasms and can’t sit for an extended amount of time. Some days her spine is tender to the touch. A set of X-rays showed she had a curvature in her spine and an MRI showed multiple bulging discs. But her doctor says her back pain is due to fibromyalgia, not the discs. “My doctor says the discs are not the problem,” she says. “Per my doctor, I have over 17 pressure points.”

Her other symptoms include extremely dry eyes, mostly in the morning. “Both eyes feel dry and feel as though there is something in them.” In addition, she has difficulty sleeping and often feels fatigued. She is taking pain medication and a medication for anxiety, but she is no longer doing any type of therapy because it caused too much strain on her back. She wonders if any other community members have experienced similar symptoms.

Recommended Related to Fibromyalgia

Fibromyalgia: Work and Disability

Many people with fibromyalgia continue to work full or part time. But the chronic pain and fatigue associated with fibromyalgia often make working very difficult. If you are employed, it's important to learn about managing fibromyalgia symptoms and coping with pain and fatigue. In addition, if you have tried different jobs and are unable to work, you might consider applying for disability. Disability may be difficult to get because of rules about work capacity.  

Read the Fibromyalgia: Work and Disability article > >

One man responds that he had a similar experience when he was first diagnosed with fibromyalgia. “My intro was just in my chest muscles -- I thought I was having a heart attack at the time.” He suggests she see a rheumatologist, if she hasn't already, for an accurate diagnosis. But he says it’s important to find a rheumatologist who is experienced in treating fibromyalgia. “Call around. Your first question should be, ‘Does the doctor treat fibromyalgia?’ Unless you get a definite YES, keep dialing.”

Another community member agrees that the symptoms described sound like fibromyalgia. She says that in her experience, fibromyalgia symptoms can vary a lot from day to day. “I know that in the many years I have dealt with fibromyalgia that there aren’t many days that are the same or many areas of my body that acted or reacted the same time after time,” she says.

One member wonders how to find a doctor in her area who will diagnose fibromyalgia. “I live in the Louisville, Kentucky area and have yet to find any doctor within 100 miles who will diagnose or believe in fibromyalgia,” she says.

Two community members say that diagnosing fibromyalgia can be a long and frustrating process. One of them adds that it took her three years to get diagnosed.

Another woman suggests consulting with her primary care doctor and voicing her concerns about fibromyalgia. “You have to keep at it until someone listens,” she says. She suggests writing down a list of all her symptoms and giving the list to her doctor. “That way you don’t forget anything, and if you are shy or nervous then it is in plain English for the doctor to see. Usually it starts the process of questions by the doctor.”

Two other community members also suggest trying to find a rheumatologist to diagnose fibromyalgia. They say that in their experience, rheumatologists generally seem to know the most about fibromyalgia and are more likely to diagnose it correctly. “Don’t give up, ever. Keep asking until you have an answer and a diagnosis,” one says.

Reviewed on January 18, 2011

Today on WebMD

instructor training woman with dumbbells
Can it help your fibromyalgia flare-ups?
woman painting
It’s hard, but we’ve got tips.
 
woman at desk rubbing shoulder
Tips to modify your workspace is one step.
Woman rubbing her upper back
Get treatment options and coping skills.
 
Fatigue or Something More
Slideshow
Woman with stressed, fatigue
Article
 
woman in pain
Article
69x75_thumbnail_woman_applying_pressure_to_forehea
Article
 
woman eating apple
Article
Sex Advice for Single Women
Article
 
Your Symptoms
Article
Uncomfortable mature woman
Article