The course of lupus varies by
individual and is hard to predict, because symptoms come and go. Lupus usually
develops so slowly that a person may not notice the symptoms for a long
time. Sometimes lupus develops and progresses rapidly.
Periods of time when you have lupus symptoms are called
flares or relapses. Periods of time when your symptoms are under control are called
remissions. Flares and
remissions can occur abruptly, unexpectedly, and without clear cause. There is
no way to predict when a flare will happen, how bad it will be, or how long it
will last. When you have a lupus flare, you may have new symptoms in addition
to those you have had in the past.
If you have lupus, chances are good that you are no stranger to fatigue. It is one of the most common complaints among people with the disease.
Artist and children’s book illustrator Adjoa B., who asked that her last name be withheld to protect her privacy, knows what it's like.
“I do experience the fatigue,” says Adjoa, who was diagnosed with lupus in 1993. “By 8 p.m., I often feel like I need to go to bed.”
Now 54, the Annapolis, Md. resident says that she hasn't had the overwhelming fatigue...
Children can get lupus, though
it more commonly develops in the teen years or later. Lupus in children appears
to be more severe than in adults when vital organs, such as the kidneys and
heart, are involved.
Some people with lupus have
complications such as kidney and heart problems. There are also concerns if you have lupus and are pregnant.
Living with lupus
Most people with lupus are able to continue their usual
daily activities. But when your symptoms flare, you may find that you need to cut back on your activity level, get help
with child care, or change the way you work. Or you may find that you need time off from all daily activities.
with lupus can expect to live a normal or near-normal life span. This depends
on how severe your disease is, whether it affects vital organs (such as the
kidneys), and how severely these organs are affected.
A key to living with lupus is communication. Stay in touch with your doctor about new or increased symptoms, side effects of medicines, and your worries and anxieties. Talk with your family, friends, and employer so they understand what you can and can't do, and what they can do to support you.
In this article
This information is produced and provided by the National
Institute (NCI). The information in this topic may have changed since it was written. For the most current information, contact the National
Institute via the Internet web site at http://
.gov or call 1-800-4-CANCER.
WebMD Medical Reference from Healthwise
May 10, 2012
This information is not intended to replace the advice of a doctor.
Healthwise disclaims any liability for the decisions you make based on this