For Mimi Mosher, a person with primary progressive MS, clarity first came when she lost her vision.
Her eyesight steadily eroded by multiple sclerosis, Mimi now lived in a near-constant dusk. The realization came at a scary time. “I was driving. I thought, I can’t do this anymore. I had to pull off the road and let my friend drive,” says Mimi.
Until then, Mimi had been living “in a deep state of denial” about her advancing symptoms. As her primary progressive MS forced her to hand over her car...
You may start working with a physical therapist right after you get a diagnosis and have follow-up appointments when you need them. Some hospitals have some on staff who specialize in MS treatment. You will need to ask your doctor for a formal referral, but check with other people with MS for suggestions on where to go in your area.
On your first visit, your therapist will talk to you about your symptoms, see how well you can handle different tasks, and show you exercises you can do at home.
One to three sessions may be enough. On follow-up visits, you may learn:
Range-of-motion exercises, like straightening and bending your arms and legs
Tips to prevent falls
How to use canes, crutches, scooters, wheelchairs, or other aids, if necessary
Your therapist will also help you make a fitness program that’s good for your strength and goals. Regular exercise helps with all types of MS, but it can be hard when you’re tired or you get overheated easily. You'll learn how to work around these issues to get the most from your workouts.
Most therapists can give you more sessions to help you reach any goals you have, like overcoming a foot drag that slows your pace. Some may be able to come to your home to work with you.
If your MS symptoms make it hard to do your job, your therapist can take you through some tests and document the kind of trouble you’re having. It's called a functional capacity evaluation. It measures whether you are able to work an 8-hour day and may help if you need to apply for Social Security disability benefits.