A few years ago, during a nationally televised tribute to actor-director Christopher Reeve, Reeve's wife, Dana, took the stage to sing a song. Before launching into her number, she spoke eloquently of her love for Reeve, paralyzed by a spinal cord injury received in a fall from a horse. And then she turned toward her husband, sitting in the audience, and smiled secretively at him. "Chris? You still do it for me, baby," she said.
By Virginia Sole-Smith
Nothing makes me feel more overtly "married" than when I open up my wallet to pay at Home Depot and pull out the shiny blue debit card labeled, in big block type, SHARED. My husband, Dan, broke out the label maker two months after we got married to distinguish the cards linked to our joint account from the identical blue debit cards we use for our separate personal checking accounts. (And in the rush of newlywed excitement, it didn't occur to him to use a more discreet...
In that "public-private" moment, Dana and Christopher Reeve told the world what scientists and sex therapists already know: Sexuality doesn't end when a person suffers a disability. There are quite literally hundreds of ways to experience sexuality and sexual pleasure. Even when someone apparently loses all the physical sensation in their genital regions, couples can still achieve sexual closeness, pleasure, and even orgasm.
Mitchell Tepper, PhD, president of the Sexual Health Network (www.sexualhealth.com), travels the country speaking about sexuality to conventions and groups of people with disabilities. Tepper, whose spinal cord was injured in a diving accident when he was working as a lifeguard some 20 years ago, tells listeners that television and movies often promote myths about sexuality and disability.
"For example, people with spinal cord injury are often portrayed in movies as sexually frustrated men and women who either have to rely on buying sex from a prostitute or have to go without," he says.
Nothing could be further from the truth, says Beverly Whipple, PhD, RN, FAAN, a professor emerita in the college of nursing in the neuroscience center at Rutgers University and a noted researcher on sexual health. "Sexuality encompasses the totality of our being," she says. "Think of a candy cane. The red is the peppermint flavor. But do you only taste peppermint in the red or throughout the candy cane? You taste it throughout, and similarly our sexuality goes through all of us."
Whipple advises people with disabilities -- particularly those with limited sensation in the "traditionally" sexual parts of the body -- to talk with partners about many of the ways to have erotic pleasure that do not involve the genital area. "Sensuality and sexuality are much more than the genitals."
From giving and receiving touch in areas of the body like the cheek, the neck, or the back of the hand to using scent -- candles and aromatherapy -- or music, Whipple suggests using all the senses for erotic pleasure.
"Different sounds, scents, and sights can bring us pleasure. For example, maybe you like peeling grapes and feeding them to your partner." She calls these alternative options -- paths to sexual pleasure that don't involve the exchange of bodily fluids -- "outercourse."
Outercourse isn't the only option. Many people who have, through spinal cord injury or other neurological disorders, lost all feeling or sensation in their genital areas can still experience orgasm as a result of genital stimulation, Whipple says. She's done a wide range of laboratory studies involving women with spinal cord injuries, and they report having orgasm from genital stimulation, feeling it above the level of their injury. "They report that it feels just like the orgasm they had before their injury, except they feel it only in part of their body," Whipple says.