"Pseudotumor" means "false tumor." It's caused by increased pressure around the brain.
It can be hard to tell a pseudotumor from a real tumor. So you should see your doctor to have your symptoms checked out. The symptoms of pseudotumor cerebri can get worse and hurt your vision. Getting treated quickly can help save your sight.
Your body constantly makes cerebrospinal fluid. Then it reabsorbs the fluid through your blood vessels to keep the same amount flowing around your brain and spinal cord.
Sometimes your body makes too much cerebrospinal fluid. Or it doesn't reabsorb enough fluid. If either of these things happens, the amount of fluid isurrounding your brain can rise. This can raise the pressure on your brain and cause swelling of the optic nerve, which sends messages from your eyes to your brain.
Who’s at Risk
Pseudotumor cerebri is most common in women ages 20 to 50, especially if they are obese.
Other conditions that can raise your risk include:
- Addison's disease
- Behcet's syndrome
- Blood vessel or blood clotting problems
- Lyme disease
- Kidney disease
- Polycystic ovary syndrome
- Sleep apnea
- Underactive parathyroid glands
Taking these medicines can also make you more likely to develop pseudotumor cerebri:
Signs you might have this condition include:
- Headaches that start behind your eyes or in the back of your head
- Blurry vision or double vision
- A blackout in your vision that lasts for a few seconds at a time
- Nausea, throwing up
- Ringing in your ears that pulses in time with your heartbeat
- Stiff neck
Your symptoms might get worse when you exercise. This is because activity boosts the pressure in your brain.
First, your doctor will ask about your symptoms and medical history.
The biggest clue is when your doctor looks at the optic nerve, using a tool called an ophthalmoscope, and seeing that it’s swollen.
You might get one or more of these tests:
- Spinal tap (lumbar puncture). The doctor inserts a needle into your lower back and removes a small amount of fluid from around your spine. This test can check for increased pressure in your skull.
- CT, or computed tomography. It's a powerful X-ray that makes detailed pictures of your brain.
- MRI, or magnetic resonance imaging. It uses powerful magnets and radio waves to show increased pressure or abnormal growths in your brain.
You'll also need regular vision tests. Your eye doctor will check whether you have any blind spots in your vision or swelling of the optic nerve in the back of your eye. These are signs of pseudotumor cerebri.
Getting treated as soon as possible can help you keep your vision.
One of the best ways to ease symptoms is to lose extra pounds. It can be hard to do that on your own, so you may want to get help from a dietitian, personal trainer, or weight loss clinic. Also limit salt and fluids in your diet to lower the amount of spinal fluid your body makes.
Medicine and surgery are the main treatments for pseudotumor cerebri. They reduce the pressure in your skull.
A few medicines are used to treat this condition:
- Acetazolamide (Diamox) is a glaucoma drug that lowers the amount of cerebrospinal fluid your body makes.
- Furosemide (Lasix) removes fluid from your body by making you pee more often.
- Steroids lower pressure in the brain.
- Migraine medicines if you get this type of headache.
If your symptoms are severe or they don't get better with medicine, you might need surgery to reduce pressure in your brain or behind your eyes. These procedures are used to treat pseudotumor cerebri:
- Shunting. The surgeon inserts a long, thin tube called a shunt into your brain or spine to drain extra fluid.
- Optic nerve sheath fenestration. The surgeon makes a cut in the tissue around the optic nerve to allow fluid to drain.
What to Expect
With treatment, the pressure in your brain will go down. You should start to feel better within a few months. Most people completely recover, but a few will have permanent vision loss.
Because pseudotumor cerebri can come back, see your doctor for follow-up visits and get regular eye checkups. Tell the doctor right away if you notice any new symptoms.
Lose weight if you're overweight to help prevent pseudotumor cerebri from coming back. If you have a lot of weight to lose and diet and exercise alone don't help enough, your doctor might suggest weight loss surgery.