When you’re looking for resources for atrial fibrillation (AFib), these sources will get you started on the right track.
Nonprofit organizations and online forums can teach you more about the condition and keep you up to date on new research. Social media and in-person support groups will connect you with other people in similar circumstances so you can hear different viewpoints and build relationships.
These resources can provide valuable explanation, context, and encouragement. But they can’t give you medical advice. Ask your doctor if you have concerns about your health, and always check in before changing your treatment.
Take care to check that the information you get about AFib online is reliable. Keep these questions in mind:
- Who runs this site? Are they selling anything?
- Is this information based on scientific research?
- Is this site up to date?
- Do these claims seem too good to be true?
Nonprofit Organizations
These groups offer articles about treatments, medication, and how to take care of yourself. You can pick which communities to join based on the details of your condition and your interests.
- American Heart Association
- CDC’s information about AFib
- American Stroke Association: Atrial fibrillation can make a stroke more likely. Here’s an infographic explaining the link.
- My AFib Experience
- Upbeat/Heart Rhythm Society
- CardioSmart’s information on AFib: CardioSmart comes from the American College of Cardiology and is written for patients.
- Million Hearts: This site is on heart health in general.
Blogs
Some people write online about how they manage their AFib. Remember that these blogs can be inspiring but aren’t a place to get expert medical advice.
- My AFib Heart
- Living with Atrial Fibrillation
- Stop Afib: This website is run by an AFib patient and curates news and resources. It publishes articles from patients and experts.
Online Communities
You can follow most of the nonprofit organizations listed above on the major social media platforms. Find the links on each organization’s website to be sure you get the official accounts.
Facebook. You might want to join groups for people with AFib. Members talk about their treatment and ask and answer questions. Most groups are private. Request to join to read the discussion.
https://www.facebook.com/groups/AtrialFibrillationSupportForum
https://www.facebook.com/groups/AFinfo
https://www.facebook.com/groups/afibsupport
Reddit. This online community hosts another forum for people with AFib. Share your stories and tips, or just browse the posts.
https://www.reddit.com/r/AFIB/
Hashtags. Search the hashtags #atrialfibrillation and #atrialfibrillationawareness on Facebook, Instagram, or Twitter.
Social media can spread bad information about all kinds of topics. Remember to check that what you’re reading is reliable.
Remember:
- Look for the original source of any information that’s shared.
- Visit the account’s website for more context and details.
- Check for a symbol that says the account is verified.
