Lupus and Sleep
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CHRISTINE MISERANDINOHey, come on in! Nice to meet you. [INTERPOSING VOICES] Let's move over here. Oh, wow, look at that. Woo! OK, lupus slumber party, girls. Get comfortable.
KIM SCHOFIELDI'm trying. I'm moving.
CHRISTINE MISERANDINOOK, we have our blanket. We have our pajamas. Wait, do you have that snuggly blanket that you need?
ROBIN DANIELOh, this is mine. This is my [INAUDIBLE].
CHRISTINE MISERANDINOSo if it is the lupus slumber party, is it daytime or nighttime? Who knows?
ROBIN DANIELIt's whenever you can sleep time. [LAUGHTER]
CHRISTINE MISERANDINOAnd what do you guys do about noise, or hot and cold? There's so many issues that affect my sleep.
ROBIN DANIELOh, gosh.
KIM SCHOFIELD:Well, I sleep with a fan.
ROBIN DANIELSo do I.
STACIE COLLETTSo do I.
KIM SCHOFIELD:Because, A, for the noise.
STACIE COLLETTThe noise.
KIM SCHOFIELD:And also because it actually cools your body temperature down.
KIM SCHOFIELDAnd it helps with flaring.
CHRISTINE MISERANDINOWhere have you been my whole life?
KIM SCHOFIELDTired. [LAUGHTER] I've also found that if I took a nice warm shower in the evening, that kind of winds me down, and it starts to set me-- that my body starts saying, OK, it's time to go to bed.
ROBIN DANIELEpsom salt also helps with the pain. And a warm Epsom salt bath helps, and it'll help relax you. And that's definitely helped me. And stretching. Stretching is big.
KIM SCHOFIELDAnd I start to de-stress. I start to kind of breathe a little slowly. I kind of lay down and get myself in position, start moving a little bit, to just calm me down a little bit. Because stress is so overwhelming, and it keeps you tight. So I may put on a little jazz, and some soft music.
ROBIN DANIELDim the lights.
CHRISTINE MISERANDINOI want to go to your house to sleep.
KIM SCHOFIELDDim those lights a little bit.
CHRISTINE MISERANDINOIt sounds good over there.
CHRISTINE MISERANDINOBut I know that's like Lupus Joke of the Day, though.
CHRISTINE MISERANDINOTry to de-stress. So then you're going, I will not stress, I will not stress, I will not stress.
KIM SCHOFIELDI must sleep. I must sleep. I must sleep.
CHRISTINE MISERANDINOYou need to sleep right now!
ROBIN DANIELThat's where deep breathing does help.
CHRISTINE MISERANDINOOK. That's good. And I find, too--
ROBIN DANIELSlow, deep breathing.
CHRISTINE MISERANDINOLike I, for one, I learned to hide my clock. Because that clock, it is evil.
CHRISTINE MISERANDINO: Because you look at it, and then all of a sudden, you go, that's a half-hour of less sleep I just got.
ROBIN DANIELYep. Exactly.
CHRISTINE MISERANDINOI have to wake up in five hours. In four hours. In three hours. And it's the countdown to evil wake-up time.
CHRISTINE MISERANDINOSo I actually learned to put my clock somewhere that I can't see it. Because I can't see it--
ROBIN DANIELThat's a good idea.
KIM SCHOFIELDThat's a great idea.
CHRISTINE MISERANDINOAnd I found that, too, an eye mask? It's the same idea of turning off your phone.
CHRISTINE MISERANDINO: Because if I can't see the shadows or the dust on the fan, or all the things that are going to distract me--
KIM SCHOFIELDThat's true.
CHRISTINE MISERANDINO: If I'm forced to close my eyes, I've found-- you know, blindfold me and put me to bed. Because if I can't see it, it's not bothering me.
STACIE COLLETTThat's right.
CHRISTINE MISERANDINOAnd it might sound silly, but you've got to find what works for you. But these little things help so much.
STACIE COLLETTWell, for me, I have a lot of hip pain. And I have basically had to learn how to sleep on my back.
ROBIN DANIELDo you use a lot of pillows to kind of prop your--
STACIE COLLETTYes, I sleep on two pillows.
KIM SCHOFIELDI sleep on my side because of my hips. So I kind of use a lot of pillows on my side.
CHRISTINE MISERANDINOYes. Even for my breathing, when I had swelling around my lungs or whatever, I've found that when I was a little more propped up and not so flat, that helped me breathe better.
KIM SCHOFIELDOr putting pillows under your ankles helps, because the ankles are swelling.
KIM SCHOFIELDI usually sleep with pillows under my ankles
CHRISTINE MISERANDINOLook at me. I didn't know that. [LAUGHTER] I'm so glad we did this. Because we're over here, going, oh, we've got to lift our ankles.
STACIE COLLETTOK, girls, so I've heard that exercise is supposed to help you sleep at night.
CHRISTINE MISERANDINOWe're not buying it over here, so convince us.
calming kind of things, definitely helps. Like, I started doing the hot water class, and it's-- the water temperature's like 97 degrees and above.
STACIE COLLETTOh, wow.
ROBIN DANIELAnd you get in there-- it feels so good. And water's just amazing for arthritis, and especially warm water. And so I get in there and stretch, or even stretching on the bed. Like I'll just-- pulling your knees up to your chest.
KIM SCHOFIELDThat's what I do. I kind of do the range of motion, move the joints back a little bit. I stretch a little bit. I bend. And do a little light stretching.
STACIE COLLETTDo you do it in the morning? Or do you do it in--
KIM SCHOFIELDI do it right before I go to bed.
ROBIN DANIEL: And in the morning.
KIM SCHOFIELD: And in the morning, first thing in the morning.
STACIE COLLETTProbably helps you go, huh?
ROBIN DANIELBefore you even get out of the bed.
ROBIN DANIELI can't-- I have no range of motion as soon as I wake up. Like, I have to stretch.
CHRISTINE MISERANDINOI feel like the Tin Man. Like, oil can!
ROBIN DANIELI know.
CHRISTINE MISERANDINOI need to be oiled! So I guess these things help.
KIM SCHOFIELDYes, they do.
CHRISTINE MISERANDINOAnd I've heard that exercise during the daytime gets out that energy so that at night, you are thoroughly exhausted and ready for sleep.
CHRISTINE MISERANDINO: All these things are so important. So if I can do two or three of them--
KIM SCHOFIELDYou'll see a difference.
CHRISTINE MISERANDINOI think that's good. But I have to say, girls, just talking about all this? I'm exhausted.
CHRISTINE MISERANDINOI think we need to go back to sleep.
ROBIN DANIELLet's go.
KIM SCHOFIELDI'm with you.
CHRISTINE MISERANDINOLet's go.
ROBIN DANIELI'm down.