I’ve gone through a lot of personal growth since I was a kid. Now I feel perfect in my skin and have nothing to hide. It’s liberating.
– Melissa M.
Expert View
Historically, dermatologists have dismissed vitiligo as just a cosmetic concern. I’ve had many people come to me in desperation after they’ve gone through five or six other dermatologists who have told them their condition is just not a big deal. But research shows that people of color have a more negative attitude towards their vitiligo than those with lighter skin.
–John Harris, MD
Professor, Department of Dermatology, University of Massachusetts Chan Medical School
Advocacy
When you have vitiligo, it’s easy to feel like you’re the only person in the world living with the disease. But you’re not. There’s a whole village of us out there.
– Erika Page
My Experience
Something a child said helped me start to shift my perspective. I was working at a camp and this little girl told me that I was a butterfly. She identified my spots as a butterfly, as something beautiful.
– Mark Braxton
Advocacy
A lot of people with vitiligo see a dermatologist, but they don’t talk to their primary care provider about their condition. But other autoimmune disorders, such as thyroid disease, are associated with it. My primary care physician does a full bloodwork panel at my annual physical.
– Kim Bargiel
Vitiligo advocate in Allendale, New Jersey
Expert View
I think it’s important for me to educate my patients with vitiligo, especially children, so they can explain what vitiligo is to other people, such as on the playground or in school.
– Lauri Vargo, MD
Assistant professor, dermatology, University of Nebraska Medical Center in Omaha