Information and Resources
Interstitial Cystitis
Important
It is possible that the main title of the report Interstitial Cystitisis not the name you expected.
Synonyms
- Hunner's Ulcer
- IC
- Hunner's Patch
- Pelvic Pain Syndrome
- Trigonitis
- Urethral Syndrome
Disorder Subdivisions
- None
General Discussion
Interstitial cystitis is a chronic, painful inflammatory condition of the bladder wall characterized by pressure and pain above the pubic area along with increased frequency and urgency of urination. This occurs because of chronic inflammation of the lining of the bladder and swelling of the interior walls of the bladder. Affected individuals urinate frequently with pain even though there is no diagnosed bladder infection. In a small percentage of cases, people with interstitial cystitis also have scarring and ulcerations on the membranes that line the bladder. Interstitial cystitis typically affects young and middle-aged women, although men can also have this disorder. The exact cause of interstitial cystitis is not known.
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Resources
Interstitial Cystitis Association
110 North Washington St
Suite 340
Rockville
MD
20850
USA
Tel: (301)610-5305
Fax: (301)610-5308
800: (800)435-7422
ICAmail@ichelp.org
http://www.ichelp.org
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe
MI
48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
800: (800)598-4668
aarda@aarda.org
http://www.aarda.org/
American Urological Association Foundation
1000 Corporate Blvd.
Linthicum
MD
21090
USA
Tel: (410)689-3700
Fax: (410)689-3800
800: (866)746-4282
auafoundation@auafoundation.org
http://www.auafoundation.org
NIH/National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda
MD
20892-3580
800: (800)891-5390
nkudic@info.niddk.nih.gov
http://kidney.niddk.nih.gov/
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/
International Painful Bladder Foundation
Burgemeester Le Fèvre de Montignylaan 73
3055 NA
Rotterdam
The Netherlands
Tel: +31-10 4613330
Fax: +31-10 4613330
info@painful-bladder.org
http://www.painful-bladder.org
AutoImmunity Community
Tel: (919) 552-9057
bandrews@autoimmunitycommunity.org
http://autoimmunitycommunity.org
For a Complete Report:
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 1/3/2007
Copyright 1986, 1988, 1990, 1991, 1994, 1996, 1997, 1998, 1999, 2000, 2007 National Organization for Rare Disorders, Inc.
WebMD Medical Reference from the National Organization of Rare Disorders

