Left untreated, narcolepsy may be devastating both psychologically and socially. However, with proper management and treatment, people with narcolepsy usually lead meaningful and productive personal and professional lives.
If you are diagnosed with narcolepsy, consider joining a support group. By becoming a member of a support group, you'll get emotional support from people who are having similar problems. This will alleviate isolation and the feeling that you are the only one with this condition.
The Narcolepsy Network can help locate a support group in your area.
Narcolepsy Network Inc.
PO Box 2178
Lynnwood, WA98036
(888) 292-6522
www.narcolepsynetwork.org
Other Narcolepsy Resources
American Sleep Association
100 Cambridge Street, Ste. 1400
Boston, MA 02114
[email protected]
www.sleepassociation.org
National Sleep Foundation
1010 N. Glebe Road
Suite 420
Arlington, VA 22201
[email protected]
www.sleepfoundation.org
National Center for Sleep Disorders Research
National Heart, Lung, Blood Institute
6701Rockledge Drive
Bethesda, MD 20892
(301)435-0199
www.nhlbi.nih.gov/about/org/ncsdr
Narcolepsy Institute
Montefiore Medical Center
(718) 920-6799
www.narcolepsyinstitute.org
Wake Up Narcolepsy
PO Box 60293
Worcester, MA 01606
(978) 751-3693
www.wakeupnarcolepsy.org