Systemic Lupus Erythematosus
Additional Resources continued...
Lupus Clinical Trials Consortium, Inc. (LCTC)
47 Hulfish Street, Suite 442
Princeton, NJ 08540
The LCTC is a nonprofit organization that encourages the identification and
testing of promising new therapies for lupus. It provides infrastructure
support grants to certain academic institutions to support their clinical
research activities; encourages lupus clinical researchers from those
institutions to share their expertise; supports and conducts educational
efforts to show the need for lupus clinical research; and disseminates
scientific insights to advance the discovery of new lupus therapies.
Lupus Foundation of America (LFA), Inc.
2000 L Street, N.W., Suite 710
Washington, DC 20036
The LFA assists local chapters in providing services to people with lupus,
works to educate the public about lupus, and supports lupus research. Through a
network of more than 500 branches and support groups, the chapters provide
education through information and referral services, health fairs, newsletters,
publications, and seminars. Chapters provide support to people with lupus,
their families, and friends through support group meetings, hospital visits,
and telephone help lines.
221 East 48th Street, Ground Floor
New York, NY 10017
Fax: (212) 593-5181
Rheuminations, Inc. is a private, nonprofit foundation committed to funding
excellence in medical research to achieve a better understanding of the causes
of lupus and to bring new treatments to market; to educate and to empower those
who live with lupus and those who care for them; to establish a higher level of
public awareness about the disease.
SLE Foundation, Inc.
149 Madison Ave., Suite 205
New York, NY 10016
The foundation supports and encourages medical research to find the cause
and cure of lupus and improve its diagnosis and treatment. It also provides a
wide variety of services to help patients with lupus and their families. In
addition, this voluntary organization conducts a broad-based public education
program to raise awareness of lupus and increase understanding of this serious,
chronic, autoimmune disease.
The NIAMS gratefully acknowledges the assistance of Jill P. Buyon, M.D.,
Hospital for Joint Diseases, New York, New York; Patricia A. Fraser, M.D.,
Brigham and Women's Hospital, Boston, Massachusetts; John H. Klippel, M.D., The
Arthritis Foundation, Washington, DC; Michael D. Lockshin, M.D., Barbara
Volcker Center for Women and Rheumatic Disease, Hospital for Special Surgery,
New York, New York; Rosalind Ramsey-Goldman, M.D., Dr.P.H., Northwestern
University Medical School, Chicago, Illinois; George Tsokos, M.D., Uniformed
Services University of the Health Sciences, Bethesda, Maryland; and Elizabeth
Gretz, Ph.D., Barbara Mittleman, M.D., Susana Serrate-Sztein, M.D., and Peter
E. Lipsky, M.D., NIAMS, NIH, in the preparation and review of this and earlier
versions of this publication. Special thanks also go to the many patients who
reviewed this publication and provided valuable input. An earlier version of
this booklet was written by Debbie Novak of Johnson, Bassin, and Shaw, Inc.
The National Institute of Arthritis and Musculoskeletal and Skin Diseases
(NIAMS), a part of the Department of Health and Human Services' National
Institutes of Health NIH), leads the Federal medical research effort in
arthritis and musculoskeletal and skin diseases. The NIAMS supports research
and research training throughout the United States, as well as on the NIH
campus in Bethesda, MD, and disseminates health and research information. The
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse is a public service sponsored by the NIAMS that
provides health information and information sources. Additional information and
research updates can be found on the NIAMS Web site at www.niams.nih.gov.